The CARE4CKD consortium is coordinated

Servicing the Creative Industry for More Than a Decade

The CARE4CKD consortium is coordinated by the Saronic Nephrological Center and includes leading nephrology centers, patient organizations, and academic institutions from several European countries. Together, our partners contribute expertise, experience, and a shared commitment to advancing Conservative Care for CKD.

Coordinator: Saronic Nephrological Center
Budget: €60,000
Duration: 2025–2027

 SARONIC NEPRHOLOGICAL CENTER Ltd

Country Greece
City AEGINA ISLAND
Website www.dialsc.gr

Type of organisation Small and medium sized enterprise

SARONIC NEPHROLOGICAL CENTER Ltd is a pioneering movement funded by a private institution in the area of clinical nephrology with the objective to offer anthropocentric therapeutic services to outpatients with symptoms of renal insufficiency or to patients who have end-stage renal dysfunction (ESRD) and are required to have dialysis sessions. It started operating in November of 2009, with the potential to become a benchmark for Greek and foreign visitors, who wish to indulge in relaxing moments and escape from everyday life and routines, on Aegina island, or the surrounding areas of the Saronic Gulf, all year round, offering high-quality dialysis sessions, similar to those of their home dialysis centers.

At this moment, the dialysis unit provides dialysis services to 15 permanent citizens/patients of Aegina, where 4 of them are registered on the national (Greek) waiting list for a kidney transplant.

Our dialysis unit’s staff is oriented at providing nursing and medical care to dialysis patients and patients with Chronic Kidney Disease. However, it also provides advisory services to patients with CKD and their caregivers who are unfamiliar with a kidney patient’s permanent and demanding care.

The unit’s nephrologists monitor 8 kidney patients at stages 3/4 using the method of conservative care. Within 16 years of the unit’s operation, 34 elderly patients with CKD were provided with this kind of care, and we managed to delay their CKD‘s progression to stage 5 (it is the final stage of CKD-named ESRD- and the patient needs dialysis or a kidney transplant to remain alive).

Moreover, our nephrologists participate actively with open speeches and presentations to the local community in Aegina about managing and preventing CKD and offer continuous social support and sustainable training with long-term effects to patient groups.

Združenje invalidov z ledvično odpovedjo Slovenije

Country Slovenia
Region Savinjska, City Celje
Website https://www.zdruzenje-ilos.si/

Type of organisation Non-governmental organisation/association. Non-profit

Main sector of activity : PROVIDING SUPPORT TO KIDNEY PATIENTS AND THEIR CAREGIVERS

Association of Patients with Renal Failure Slovenia (Združenje ILOS) was founded in 2006 with the aim of improving the quality of life for individuals with chronic kidney disease. It is a national non-profit organization that provides support to kidney patients, including those on dialysis and those who have had kidney transplantation. The association ensures better social inclusion, legal protection, and access to healthcare services for its members.

ILOS association focuses on raising awareness about kidney disease, educating patients and the public, advocating for patients’ rights, and providing legal assistance with disability benefits and employment. It also offers psychosocial support, organizes social and recreational activities, and helps patients plan travel by arranging access to holiday dialysis services. With expertise in organizing patient-centered events and delivering educational programs, ILOS strives to enhance the well-being and quality of life of kidney patients.

ILOS association actively engages in raising awareness, educating, and advocating for the rights and well-being of chronic kidney disease (CKD) patients. Our expertise lies in organizing patient-centered educational events and providing psychosocial consulting. While Slovenian doctors recognize Conservative Care (CC) as a treatment option, it remains insufficiently known and presented to patients. We aim to share current knowledge in CC and collaborate with other organizations to ensure elderly patients and their caregivers are well-informed about PC and all available treatment options.

Federación Nacional de Asociaciones ALCER

Country Spain
City Madrid
Website www.alcer.org

Type of organisation Non-governmental organisation/association. Non-profit

Main sector of activity : OFFER SUPPORT AND HELP TO THE PATIENTS WHO ARE DIAGNOSED WITH CKD AND THEIR CAREGIVERS

ALCER is the acronym of the «Association to Fight Against Kidney Diseases». ALCER is a National Federation of Kidney Patients with 51 regional associations, one for each province in Spain, and two national entities for rare kidney diseases. The «Association to Fight Against Kidney Diseases» is a national non-profit-making entity established in 1976 in Spain by a group of kidney patients and relatives. It is governed by a Board of Directors, formed for people with chronic kidney diseases; and managed by a professional staff.

ALCER goals are:

– Social, psychological, educational, and work integration of people with Chronic Kidney Diseases (CKD) and their relatives

– Preventing and Early detection of Chronic kidney disease

– Social needs of people with CKD (Chronic kidney disease)

– Provide training for people with chronic kidney disease and their carers

– Advocacy of the dignity and rights of people with chronic kidney disease

– Collaboration with stakeholders related to CKD

ALCER has specific expertise in the topic of support to family caregivers and patients, having been involved in the mentoring project for people with kidney diseases. Our entity provides training in emotional management and communication skills for expert people with CKD and their family caregivers to offer support for early-detected patients. In these programs, the objective is to promote adequate coping with Chronic kidney disease.

ALCER is also a member of the European Kidney Patients Federation (EKPF), where Mr. Callego is the president of the board council (president of ALCER as well) and an active member of PLATAFORMA DE ORGANIZACIONES DE PATIENTES.

ANTALYA BILIM UNIVERSITESI

Country Türkiye
City ANTALYA
Website www.antalya.edu.tr

Type of organisation Higher education institution (tertiary level). Non-profit. Public body

Antalya Bilim University, located in Turkey, is a private higher education institution. It offers a broad range of academic programs, primarily focusing on engineering, business administration, architecture, and social sciences. The university is known for its commitment to research and innovation, fostering a learning environment that encourages both theoretical understanding and practical application. As a private university, it typically attracts students from diverse backgrounds, both domestically and internationally. The number of staff varies, but it generally includes a mix of full-time professors, part-time lecturers, and administrative staff. Additionally, the university hosts visiting scholars and collaborates with other educational and research institutions. Antalya Bilim University’s commitment to providing a comprehensive educational experience is evident in its continual efforts to expand and improve its academic offerings and campus resources.

Antalya Bilim University (ABU) is a dynamic institution known for its interdisciplinary research, strong international collaborations, and commitment to addressing societal challenges through education, research, and community engagement. The university has experience in projects related to health sciences, social sciences, and economics, particularly in areas concerning public health policies, health economics, and patient-centered care models.

ABU has participated in national and international research projects focusing on healthcare accessibility, patient decision-making, and policy-oriented healthcare strategies. The university fosters partnerships with medical professionals, policymakers, and social scientists to develop holistic solutions to healthcare challenges.